IMPORTANT UPDATE ABOUT PARKING AT THE WESTIN HOTEL: Due to street closings, the only approach to parking at the Hotel is from the NORTHEAST. You can access the front of the Hotel and underground parking from southbound Grand and Pershing Blvd. Follow the signs for Westin Hotel Access.
Food and lunch services at the conference
There are a number of places in and around the Westin Crown Center for food.
- Crown Center shops and restaurants
- Freight House, located in Kansas City’s Crossroads district, it is connected to the Westin by the KC Link pedestrian bridge through the Union Station and has three options: Fiorella’s Jack Stack BBQ, Austrian dining at Grünauer, and Northern Italian cuisine at Lidia’s
- Plus other options available by the KC Street Car and nearby
Schedule Summary
- Monday, April 10
- 12 p.m. – 7:30 p.m. Century Foyer: Registration open
- 3 p.m. – 6 p.m. Liberty: Preconference workshops
- 6 p.m. – 7:30 p.m. Century Foyer: Welcome Reception
- Tuesday, April 11
- 7 a.m. – 6 p.m. Century Foyer: Registration open
- 7 a.m. – 8 a.m. Century Foyer: Light breakfast
- 8 a.m. – 8:30 a.m. Century Ballroom: Opening Remarks
- 8:30 a.m. – 9:30 a.m. Century Ballroom: NIH Updates
- 10 a.m. – 10:50 a.m. Concurrent sessions
- Century Ballroom: Achieving clinical trial readiness in Angelman syndrome — a model for other neurogenetic disorders
- Liberty: Data Loss in the Time of Funky Gadgets: Tales from Rare Genetic/Monogenic Disorders
- Shawnee-Mission: Borkowski Diversity Travel and Glidden Undergraduate Student Awards Session
- 11 a.m. – 11:50 a.m. Concurrent sessions
- Century Ballroom: Catatonia in Genetic Syndromes: A Common Cause of Late Regression
- Liberty: Measuring Clinically Meaningful Change in Populations with Limited Neurobehavioral Repertoires: Approaches, Strengths, and Challenges
- Shawnee-Mission: Interventions to Support Caregivers of Children with Rare Genetic and Neurodevelopmental Disorders
- 12 p.m. – 1 p.m. Shawnee-Mission: Round Table Discussion on DEI in IDD Research
- 1 p.m. – 1:50 p.m. Concurrent sessions
- Century Ballroom: Poor Sleep in Intellectual and Developmental Disabilities: The Pros and Pitfalls of Multi-Method Assessment
- Liberty: Social-Communication Outcomes of Infants and Toddlers with Autism: Three Investigations of Practical Measurement Approaches Designed to be Sensitive to Intervention Effects and Change Over Time
- Shawnee-Mission: Innovative Psychosocial Intervention Research Approaches in Rare Neurogenetic Conditions
- 2 p.m. – 2:50 p.m. Concurrent sessions
- Century Ballroom: Understanding GI Problems in NDDs with a Genetic Etiology and Improving their Measurement
- Liberty: Capturing Inchstones: Novel Approaches to Measurement for Severely Affected Children With SCN2A-Associated Developmental and Epileptic Encephalopathy
- Shawnee-Mission: Family Systems Research Approaches in Families of Children with Developmental Disabilities
- 3 p.m. – 3:50 p.m. Concurrent sessions
- 4:30 p.m. – 5:30 p.m. Century Ballroom: Theodore Tjossem Postdoctoral Awards Session
- 6 p.m. – 7:30 p.m. Pershing Place: Poster Reception 1
- Wednesday, April 12
- 7 a.m. – 12 p.m. Century Foyer: Registration open
- 7 a.m. – 9 a.m. Century Foyer: Light breakfast
- 9 a.m. – 10 a.m. Century Ballroom: Plenary: Elia M. Pestana Knight
- 10 a.m. – 11:30 a.m. Pershing Place: Poster Reception 2
- 11:30 a.m. – 1 p.m. Roanoke: Executive Committee Meeting
- 1 p.m. – 2 p.m. Century Ballroom: Career Journeys in IDD Research and Work-Life Balance
- 2 p.m. – 2:30 p.m. Concurrent sessions
- Century Ballroom: Perceptions and Practices Among Bilingual, Latinx, Families Rearing Children with Intellectual and Developmental Disabilities
- Liberty: Developmental Phenotyping: Results, Challenges and Lessons Learned in Natural History Studies of Genetic Conditions Affecting Neurodevelopment
- Shawnee-Mission: Expression and Environmental Influences of the FMR1 Premutation Clinical Phenotype across the Lifespan
- 3 p.m. – 3:30 p.m. Concurrent sessions
- Century Ballroom: Improving Interventions to Support Racially/Ethnically and Linguistically Diverse Children with Developmental Disabilities and Their Families
- Liberty: Caregiver and Natural History Driven Outcome Measures for Rare Neurodevelopmental Disorders
- Shawnee-Mission: Postsecondary Experiences of Adults with Intellectual and Developmental Disabilities
- 4 p.m. – 4:30 p.m. Concurrent sessions
- Century Ballroom: Invited oral presentations: Sleep Studies
- Liberty: Multi-method approaches to understanding self-injurious behaviour
- 5 p.m. – 6 p.m. Century Ballroom: Plenary: Anne Wheeler
- Thursday, April 13
- 7 a.m. – 9 a.m. Century Foyer: Light breakfast
- 8 a.m. – 9 a.m. Century Ballroom: Plenary: Yona Lunsky
- 9 a.m. – 10 a.m. Pershing Place: Poster Reception 3
- 10 a.m. – 11 a.m. Century Ballroom: Community Engagement Session
- 11 a.m. – 12 p.m. Century Ballroom: Plenary: Wendy Chung
- 12 p.m. – 12:30 p.m. Century Ballroom: Closing Remarks