Chair: Natasha Ludwig , Kennedy Krieger Institute, Johns Hopkins School of Medicine
Discussants: Gabrielle Conecker, Decoding Developmental Epilepsies, International SCN8A Alliance, DEE-P Connections & Leah Schust Myers, FamilieSCN2A Foundation, Inc
Papers:
- Communication in Severely Impaired Young People with SCN2A Developmental and Epileptic Encephalopathy: Experiences from the SCN2A Clinical Trials Readiness Study: Anne Berg, Northwestern Feinberg School of Medicine, COMBINEDBrain; Shawn Egan, FamilieSCN2A Foundation; Leah Schust Myers, FamilieSCN2A Foundation; Lindsey Evans, Illinois Institute of Technology; Ariela Kaiser, University of Illinois at ChicagoKatherine Paltell, Amanda Nils, Aaron J. Kaat, Erica Anderson
- Exploring the Potential Utility of Responsivity Measures in Children and Young Adults With SCN2A-Associated Developmental and Epileptic Encephalopathy: Natasha Ludwig, Kennedy Krieger Institute, Johns Hopkins School of Medicine; Mary Wojnaroski, Nationwide Children’s Hospital, The Ohio State University; Rebecca Hommer, Maryland Connections Beyond Sight and Sound; Ariela Kaiser, University of Illinois at Chicago; Katherine Paltell, University of Illinois at ChicagoLindsey Evans, Karis Tucker, Jenny Downs, Chere Chapman, Gabrielle Conecker, JayEtta Hecker, Keith Coffman, Leah Schust Myers, Anne T. Berg
- Qualitative methods identify functional abilities goals for children with SCN2A-Associated Developmental and Epileptic Encephalopathy: Chere Chapman, Ardea Outcomes; Natasha Ludwig, Kennedy Krieger Institute, Johns Hopkins School of Medicine; Mary Wojnaroski, Nationwide Children’s Hospital, The Ohio Stat University; Leah Schust Myers, FamilieSCN2A Foundation; Terry Jo Bichell, COMBINEDBrainLindsey Evans, Ariela Kaiser, Katherine Paltell, JayEtta Hecker, Gabrielle Conecker, Anne T. Berg, Jenny Downs
- Milliseconds as Inches: Using EEG in SCN2A to understand attention and learning: Caitlin Hudac, University of Alabama