Multi-method approaches to understanding self-injurious behaviour
Chair: Caroline Richards, University of Birmingham Discussant: Jim Bodfish, Vanderbilt School of Medicine Papers: Caregiver interactions with providers for the treatment of self-injurious behavior in individuals with intellectual and developmental disabilities: Caroline Roberts, Department of Educational Psychology, University of Minnesota;…
Caregiver and Natural History Driven Outcome Measures for Rare Neurodevelopmental Disorders
Chair: Melissa Raspa, RTI International Discussant: Cristan Farmer, NIMH Papers: Top Caregiver Concerns in Rett syndrome and related disorders: Data from the US Natural History Study: Jeffrey Neul, Vanderbilt Kennedy Center, Vanderbilt University Medical Center; Timothy Benke, University of Colorado…
Developmental Phenotyping: Results, Challenges and Lessons Learned in Natural History Studies of Genetic Conditions Affecting Neurodevelopment
Chairs: Audrey Thurm, National Institute of Mental Health & Cristan Farmer, National Institute of Mental Health Discussant: Greta Wilkening Papers: Longitudinal Trajectory of Adaptive and Behavioral Outcomes in Phelan McDermid Syndrome: Siddharth Srivastava, Boston Children's Hospital; Kristina Johnson, Boston Children's…
Innovative Approaches for Overcoming Floor Effects in Standardized Assessments Used with Young Children with Neurogenetic Syndromes
Chairs: Wei Siong Neo, Purdue University & Lisa Hamrick, Purdue University Discussant: Elizabeth Berry-Kravis, Rush University Medical Center Papers: Heart rate deceleration indexes sustained attention in young children with congenital Zika syndrome: An illustrative psychophysiological approach for enhancing developmental assessments:…
Capturing Inchstones: Novel Approaches to Measurement for Severely Affected Children With SCN2A-Associated Developmental and Epileptic Encephalopathy
Chair: Natasha Ludwig , Kennedy Krieger Institute, Johns Hopkins School of Medicine Discussants: Gabrielle Conecker, Decoding Developmental Epilepsies, International SCN8A Alliance, DEE-P Connections & Leah Schust Myers, FamilieSCN2A Foundation, Inc Papers: Communication in Severely Impaired Young People with SCN2A Developmental…
Social-Communication Outcomes of Infants and Toddlers with Autism: Three Investigations of Practical Measurement Approaches Designed to be Sensitive to Intervention Effects and Change Over Time
Chair: Jay Buzhardt, University of Kansas, Juniper Gardens Children's Project Discussant: Brian Boyd, University of North Carolina Papers: Adapting and Piloting the Early Communication Indicator for Young Children with Autism: Jessica Steinbrenner, University of North Carolina at Chapel Hill, Department…