Skip to content

Data Loss in the Time of Funky Gadgets: Tales from Rare Genetic/Monogenic Disorders

April 11, 2023 from 10:00 am to 10:50 am

Chair: Lauren Schmitt, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine

Discussant: Alycia Halladay, Autism Science Foundation

Papers:

  • Assessing data loss in collecting EEG data in young children with Down syndrome and Fragile X syndrome: Carol Wilkinson, Division of Developmental Medicine, Boston Children’s Hospital 
  • Who is represented in neuroimaging data? The case of functional Near Infrared Spectroscopy: Elizabeth Smith, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine; Victoria Rosen, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine; Kelli Dominick, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine; Craig  Erickson , Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine
  • Implications of contiguity and timing of EEG data loss for individuals with and without genetic variants: Caitlin Hudac, University of Alabama, Carolina Autism and Neurodevelopment (CAN) Research Center; Nicole Friedman, University of Alabama
  • Losing data before putting on the cap: Prevalence of data loss from psychological, cognitive, and behavioral measures: Lauren Schmitt, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine; Ashley Dapore, Cincinnati Children’s Hospital Medical Center