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Maggie Koerth, Senior Science Writer, FiveThirtyEight

Maggie Koerth is an award winning science journalist.  Her work covers diverse topics ranging from electric infrastructure to panda sex to COVID-19.
Science Communications and the Importance of Talking to Non-Scientists
Monday, April 5, 12:00-1:15 PM (CDT)

Neda Sadeghi, PhD, Data Scientist, Section of Clinical and Computational Psychiatry: Comp-Ψ, National Institute of Mental Health, National Institutes of Health

Effective Data Visualization
Visualization tools are essential for data exploration and scientific discovery. In this workshop, we explore basic design principles that lead to effective visualizations. We will cover guidelines and demonstrations of these techniques that can be utilized in your own research.
Monday, April 5, 2:00-3:15 PM (CDT) SLIDES

Open Remarks

John Colombo, Chair
Rodney Samaco, Co-Chair
Eric Storch, Co-Chair

Nancy Brady PhD, Chair, Speech-Language-Hearing Dept, Scientist, Life Span Institute, University of Kansas

Successes and Challenges in Treating Severe Communication Disorders

Tuesday, April 6 9:30-10:30 AM (CDT)

 

Symposium 1: Co-Occurring Psychiatric Conditions in People with Autism, Intellectual Disability, or Down Syndrome: Prevalence Rates and Service Use Across the Lifespan

  • Brenna Maddox, University of North Carolina at Chapel Hill (Chair)
  • Lauren Brookman-Frazee, University of California, San Diego (Discussant)
  • Lauren Bishop, University of Wisconsin-Madison
  • Barbara Caplan, University of California, San Diego
  • Brenna Maddox, University of North Carolina atChapel Hill

 

Symposium 2: Meaningful Differences in the Everyday Experience of Young Autistic Children

  • Lee Mason, Cook Children’s Health Care System (Chair)
  • Alonzo Andrews, The University of Texas at San Antonio (Discussant)
  • Alonzo Andrews, The University of Texas at San Antonio (Paper 1)
  • Janet Enriquez, University of North Carolina at Charlotte (Paper 2)
  • Lee Mason, Cook Children’s Health Care System (Paper 3)

 

Symposium 3: Masks, Mandates, and Mourning: Individuals with Neurodevelopmental and Genetic Disorders and Their Families During the Time of the COVID-19 Global Pandemic

  • Jessica Goldblum, The University of North Carolina at Chapel Hill (Chair)
  • Brian Boyd, University of Kansas (Discussant)
  • Jessica Goldblum, The University of North Carolina at Chapel Hill
  • Carly Hyde, The University of California, Los Angeles
  • Alan Gerber, Stonybrook University

Symposium 4: Needs, Treatment acceptability, and Culturally Appropriate Intervention for Asian families of children with Autism and other Developmental Disabilities

• Yue Xu, University of Illinois at Chicago (Chair)
• Esther Son, City University of New York (Discussant) • Irang Kim, Tulane University
• Qi Wei, University of Oregon
• Yue Xu, University of Illinois at Chicago

 

Symposium 5: Executive function in brain and everyday life: Lessons from autism, Down syndrome, and mixed etiology developmental disorders

  • Nancy Raitano Lee, Drexel University (Chair)
  • Benjamin Yerys, University of Pennsylvania(2nd Chair)
  • Lauren Kenworthy, Children’s National Medical
    Center (Discussant)
  • Goldie McQuaid, George Mason University
  • Benjamin Yerys, Children’s Hospital of Philadelphia
  • Nancy Raitano Lee, Drexel University
  • Emily Kuschner, Children’s Hospital of Philadelphia

 

Symposium 6: From biology to behaviour: modelling cause and intervention for problem behaviours

  • Caroline Richards, University of Birmingham (Chair)
  • Frank Symons, University of Minnesota (Discussant)
  • Frank Symons, University of Minnesota
  • Catherine Laverty, University of Birmingham
  • Adele Dimian, University of Minnesota
  • Laura Groves, University of Birmingham
  • Scott Hall, Stanford University

 

Symposium 7: Behavioral Interventions to Support Employment Transition Services for Autistic Transition Age Youth

  • Matthew Smith, University of Michigan School of Social Work (Chair)
  • Lauren Bishop, University of Wisconsin (Discussant)
  • Connie Sung, Michigan State University
  • Matthew Smith, University of Michigan
  • Kari Sherwood, University of Michigan

 

Symposium 8: Novel approaches to behavioural phenotype research in genetic syndromes associated with intellectual disability

  • Jane Waite, Aston University (Chair)
  • Jane Roberts, University of South Carolina (Discussant)
  • Stacey Bissell, University of Birmingham
  • Georgie Agar, University of Birmingham
  • Hayley Crawford, University of Warwick
  • Joanna Moss, University of Surrey
  • Katherine Ellis, University of Surrey

 

Symposium 9: Parenting Interventions for Diverse and Low-resourced Families and Communities

  • Weiwen Zeng, University of Texas at Austin (Chair)
  • Sarah Dababnah, University of Maryland, Baltimore (Discussant)
  • Megan Kunze, University of Oregon
  • Sandra Vanegas, Texas State University
  • Weiwen Zeng, University of Texas at Austin

Elizabeth M. Berry-Kravis, MD, PhD, Professor, Neurology and Pediatrics, Rush University Medical Center

Fragile X Syndrome: Supportive Treatment, Unmet Needs, and Paths to Novel Interventions and Disease-Targeted Therapies

This talk will describe clinical problems and care needs in fragile X syndrome, supportive clinical care, and efforts to create standards of care in the Fragile X Clinical and Research Consortium (FXCRC) based on information from FORWARD, the fragile X natural history database. Unmet needs and problems that limit quality of life even with optimal care will be described as well as resultant efforts to develop novel interventions and treatments targeted to the underlying disorder based on preclinical studies in FXS animal models. Problems with early clinical trials of such targeted treatments, new work to develop measures and address outcomes more relevant to FXS, and to adjust trial designs and the development process will be presented, along with some recent successes in FXS trials that reflect use of learnings from past efforts.

Wednesday, April 7, 10:40-11:40 AM (CDT)

 

Symposium 10: Patient-Researcher Partnerships Across Rare Genetic Forms of NDD and ASD

  • Shafali Jeste, University of California at Los Angeles (Chair)
  • Alycia Halladay, Rutgers University (2nd Chair)
  • Wendy Chung, Columbia University (Discussant)
  • Shafali Jeste, University of California at Los Angeles
  • Elizabeth Jalazo, University of California at Chapel Hill
  • Jill Silverman, University of California at Davis MIND Institute

 

Symposium 11: Development and Evaluation of Virtual Adaptations of Evidence Based Interventions for Autism Spectrum Disorder and Fragile X Syndrome

  • Rebecca Shaffer, Cincinnati Children’s Hospital Medical Center (Chair)
  • Judy Reaven, JFK Partners, University of Colorado Health Sciences Center (Discussant)
  • Vivian Lee, York University
  • Amy Banasik, UC Davis Mind Institute
  • Jasper Estabillo, UCLA
  • Rebecca Shaffer, Cincinnati Children’s Hospital Medical Center

 

Symposium 12: Evidenced-Based Interventions for Individuals with Developmental Delays and ASD: A Focus on Latino Families

  • Cameron Neece, Loma Linda University (Chair)
  • Sandy Magaña, University of Texas at Austin (Discussant)
  • Jonathan Safer-Lichtenstein, University of Oregon
  • Kristina Lopez, Arizona State University
  • Ann Marie Martin, University of California, Riverside

 

Symposium 13: Parent-Child Interactions: Implications for Social-Communication Intervention and Treatment in Down Syndrome

  • Susan Loveall, University of Nebraska – Lincoln (Chair)
  • Leonard Abbeduto, University of California, Davis MIND Institute (Discussant)
  • Laura Mattie, University of Illinois at Urbana- Champaign
  • Susan Loveall, University of Nebraska – Lincoln
  • Marie Moore Channell, University of Illinois atUrbana-Champaign
  • Ciara O’Toole, University College Cork

 

Symposium 14: A Continuum of Technology Use in Parent Mediated Interventions

  • Lauren Little, Rush University (Chair)
  • Brian Boyd, University of Kansas (Discussant)
  • Brittany St. John, University of Wisconsin Madison
  • Anne Hoffmann, Rush University
  • Anna Wallisch, University of Kansas
  • Lauren Little, Rush University

 

Symposium 17: Emotion Regulation in Autism Spectrum Disorder: Novel Clinical and Treatment Outcomes Measures

  • Debra Reisinger, Indiana University School of Medicine (Chair)
  • Rebecca Shaffer, Cincinnati Children’s Hospital Medical Center (Discussant)
  • Deanna Swain, Weill Cornell Medical College
  • Marika Coffman, Duke University School of Medicine • Debra Reisinger, Indiana University School of Medicine
  • Lauren Schmitt, Cincinnati Children’s Hospital Medical Center

 

Symposium 18: Remote delivery of behavioral intervention for ASD: challenges, successes, and considerations moving forward

  • Carly Hyde, University of California, Los Angeles (Chair)
  • Connie Kasari, University of California, Los Angeles (Discussant)
  • Allison Wainer, Rush University
  • Carly Hyde, University of California, Los Angeles
  • Ellen Doernberg, Case Western Reserve University
  • Katherine Okoniewski, RTI International, Research Triangle Park
  • Meredith Bucher, Purdue University

Jessica Duis, MD, Assistant Professor, Pediatrics-Clinical Genetics and Metabolism, University of Colorado

Road to Therapeutics from A to Z: Lessons Learned from Chromosome 15 Jessica Duis’s talk will be about the steps to therapeutics and how to set up a rare disease for clinical trials. It will focus on outcome measures, natural history, disease concept modeling, partnership for relevant translational studies.

Thursday, April 8, 10:40-11:40 (CDT)

Symposium 19: Modifying Quantitative Sensory Testing for intellectual and developmental disability populations: Promises and pitfalls

  • Frank Symons, University of Minnesota (Chair)
  • James Bodfish, Vanderbilt University (Discussant)
  • Chantel Barney, Gillette Children’s Specialty Healthcare
  • Alyssa Merbler, University of Minnesota
  • Griffin Rooker, Johns Hopkins University School of Medicine
  • Breanne Byiers, University of Minnesota

 

Symposium 20: Parents and Teachers: Collateral Benefits for Children with ASD

  • Lisa Ruble, Ball State University (Chair)
  • Brian Boyd, University of Kansas (Discussant)
  • Sarah Dababnah, University of Maryland, Baltimore
  • Gazi Azad, Department of Mental Health, Johns Hopkins Bloomberg School of Public Health
  • Ainsley Losh, Graduate School of Education, University of California Riverside
  • Yasamin Bolourian, Graduate School of Education, University of California, Riverside

 

Symposium 21: Depression service status and the effects of life circumstances on depressive symptoms in adults with ASD

  • Shuting Zheng, University of California San Francisco (Chair)
  • Somer Bishop, (2nd Chair)
  • Katherine Gotham, Rowan University (Discussant)
  • Shuting Zheng, University of California, San Francisco
  • Linnea Lampinen, University of California San Francisco
  • Florencia Pezzimenti, Vande

 

Graduate Student Presentations

  • Sarah Nelson Potter, UC Davis MIND Institute (Chair)
  • Patrick Dwyer, University of California, Davis: A Multidimensional Investigation of Sensory Processing in Autism: Neurophysiological, Psychophysical, SelfReport, and Parent-Report Measures
  • C. Holley Pitts, University of Louisville: Delay of Gratification in 6- to 8-year-olds with Williams Syndrome: Relations with Emotion Regulation and IQ
  • Claire Klein, Center for Autism and the Developing Brain, Weill Cornell Medicine: Structurally-Specific Lexical Diversity of Minimally Verbal Children with Autism
  • Emily Lorang, University of Wisconsin – Madison, Waisman Center: Examining Verbal Ability as a Moderator between Mother-Child Relationship Quality and Child Maladaptive Behaviors in ASD
  • Megan Krantz, Loma Linda University: Spillover of Parenting Stress and Marital Interactions Among Parents of Children with ASD

Update from National Institutes of Health

Sujata Bardhan, PhD, Health Scientist Administrator, NICHD/NIH
Melissa Parisi, MD, PhD, Chief, Intellectual and Developmental Disabilities Branch NICHD/NIH

Thursday, April 8, 3:00-4:00 PM (CDT)

Closing Remarks

John Colombo, Chair,
Rodney Samaco, Co-Chair
Eric Storch, Co-Chair